Tommy told the BBC that screening – a test which allows pregnant women to see whether their child might have Down’s syndrome – ‘scares him more than anything else’, as these tests sometimes lead women to terminate their pregnancy.
Tommy’s brother Will told the BBC that the screenplay therefore aims to strike a balance between fun and serious.
“Tommy is warm and funny and wise and smart, but there are also things that he cares about very deeply and there’s work that we need to do to make the world a better place for people with Down syndrome,” he said.
Hope from Hollywood
While the brothers are still yet to finalise their screenplay, they have managed to meet with a producer to pitch Roger the Superhero.
They told the BBC they had received a positive response from the producer, and Tommy says he is now one step closer to his dream of starring in a feature film.
They already have an idea of who might play Nole Skum and contacted Game of Thrones star Kit Harrington who agreed to perform a read through with Tommy.
Will said the rehearsal showed there was a real “proof of concept” of what they could go onto do, and they are now working on finalising the screenplay back in the UK.