Learning Disability Today
Blue Sky Offices Shoreham
25 Cecil Pashley Way
Shoreham-by-Sea
West Sussex
BN43 5FF
United Kingdom
T: 01273 434943
Contacts
Alison Bloomer
Managing Editor
[email protected]
[email protected]
Blue Sky Offices Shoreham
25 Cecil Pashley Way
Shoreham-by-Sea
West Sussex
BN43 5FF
United Kingdom
T: 01273 434943
Contacts
Alison Bloomer
Managing Editor
[email protected]
[email protected]
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During the Covid-19 pandemic, many families supporting relatives with a learning disability felt at risk of being in a crisis situation should they themselves become ill. It made many consider what emergency planning or alternative support might be arranged. As well as how a person’s support needs might be understood by an unknown paid carer.
Government guidance focused on practical matters such as getting shopping delivered or advising people to self-isolate if ill. There did not seem to be advice for family carers should they become too ill to carry out their caring role and potentially risk their relative becoming ill too.
“Equally important is giving family carers and people with learning disabilities some reassurance that other people and support services are able to step in…”
It was a complex set of circumstances that could lead from bad to worse. People were potentially dying at home through not knowing how to get the help they needed.
This led to Together Matters quickly producing practical information for family carers (Emergency planning for family carers, supporting an adult relative with learning disabilities, during the coronoavirus outbreak) covering what to do in situations that might arise. This includes advice on:
Some of the information for these scenarios is specific to the coronavirus pandemic but is based on an approach I have been advocating for many years to support families to make robust emergency plans as set out in Making a Plan for Emergencies.
These included:
The main purpose of any emergency planning is to put as many things in place as possible to reduce risks and prevent emergency situations becoming a crisis.
Equally important is giving family carers and people with learning disabilities some reassurance that other people and support services are able to step in and help when things go wrong. As we try to move on from this pandemic families are going to need this reassurance even more than ever. Supporting families to plan for emergencies should become a central part of planning and delivering support. Let’s make sure they get written!
If you are a family carer have a look at the two versions of the emergency planning guides and see which would be most useful for your family or use elements of both. Ask for some help from someone, such as a carers’ organisation or a social care practitioner, if you want support to think about the options.
Christine Towers is the Director of Together Matters, an organisation founded upon the view that working collaboratively best enables people with learning disabilities and their families to live their best lives.
The emergency planning resources are all available as a free download at https://www.togethermatters.org.uk/resources-and-information
Buy ‘Supporting People with Intellectual Disabilities to Have a Good Life as They Grow Older’ by Christine Towers here | training pack | self-study guide
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