Learning Disability Today
Blue Sky Offices Shoreham
25 Cecil Pashley Way
Shoreham-by-Sea
West Sussex
BN43 5FF
United Kingdom
T: 01273 434943
Contacts
Alison Bloomer
Managing Editor
[email protected]
[email protected]
SWAN UK (Syndromes Without a Name)
SWAN UK is the only dedicated support network in the UK for families affected by a syndrome without a name – a genetic condition so rare it often remains undiagnosed.
The aim of SWAN UK is that every family gets the support that they need, regardless of whether or not they have a diagnosis.
SWAN UK community membership is completely free, with registration quick and easy.
Contact details
Genetic Alliance UK
3rd Floor
86-90, Paul Street
London
EC2A 4NE