adults with Down's
Adults with Down’s syndrome often live independently and have jobs, but they can also face health challenges such as early-onset dementia.
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Getting it right for people with learning disabilities
Treat Me Right! started out providing learning disability training for healthcare staff in an NHS Trust, but has since snowballed, driven forward in part by a man with Down’s syndrome. Editor Dan Parton reports:
When John Keavney, who has Down’s syndrome, collapsed at his home with breathing difficulties in 2009, he was rushed to hospital. He remained there for four weeks and found his experience difficult, confusing and sometimes upsetting. But once he recovered, Keavney resolved to put his experiences to good use and improve the situation for other people with learning disabilities who have to go into hospital.
He became an active member of the Treat Me Right! campaign, and now delivers training to health professionals – from doctors and nurses to midwives, students and junior doctors – and much more at his local NHS Trust in Ealing. As part of the Treat Me Right! team, Keavney works alongside Elsa Morris and delivers up to four learning disability awareness courses each month at Ealing Hospital and Ealing Community Health Services, to groups of between six and 15 people. He talks about his experiences and how healthcare professionals can improve their treatment of people with learning disabilities.
Exclusive factsheet: In the Know - Dementia and Learning Disabilities
In the Know – Fact sheet 1: Dementia and people with learning difficulties – some basic problems
This clear, accessible pack will be of particular interest to direct care staff, carers and other practitioners in the care field. This clear, accessible pack will be of particular interest to direct care staff, carers, nurses, and other practitioners in the care fieldIn the Know has been developed to try and help anyone trying to support a person with learning disabilities who develops dementia. The pack contains a series of easily accessible, straightforward, practical and realistic guidance to help anyone supporting someone with learning disabilities and dementia to provide good quality care. It is arranged in three sections: background, factsheets and tools. Each of these sections is designed to be used alone or together with other parts of the pack. The factsheet cover the following: dementia and people with learning disabilities; getting a diagnosis; communicating with people with dementia; life story work; challenging behaviour; developing suitable environments; supporting people to eat well; the later stages; supporting people to eat well; the later stages; supporting the friends and peers of the person with dementiaThe tools include: brain diagram; alert signs; differential diagnosis chart; an example of a diagnostic care pathway; dos and don'ts; charter for good practice in life story work; strategies to deal with effectively with challenging behaviour.The pack is the result of many years of research and practice by a multidisciplinary group of academic researchers, trainers and practitioners working with people with learning disabilities who develop dementia, and with their staff, family and friends.To buy you copy of In the Know click here
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